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Here are some key things to think about and discuss with your family today

'Hugely expensive' Irene Roberts, professor of paediatric haematology, at the University of Oxford, said: "Reducing or stopping transfusions is important for patients with thalassaemia because they are a double-edged sword- essential for survival but also responsible for life-changing, life-shortening side-effects

But there are some changes, such as the one to 99211 ( Office or other outpatient visit for the evaluation and management of an established patient, that may not require the presence of a physician or other qualified health care professional

Patient satisfaction was low relative to objective improvement