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It provides practical steps, key talking points, and guidance on sharing personal HCU stories to advance policies supporting medical nutrition access, newborn screening, and rare disease research

Acknowledgements This work was fully supported by the Government of Monaco, including a PhD thesis (FS)

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8- Glutathion und Darmgesundheit: Bei Patienten mit Reizdarmsyndrom (IBS) wurden ein deutlicher Rckgang des Enzyms, das fr die Glutathionsynthese zustndig ist, und ein niedriger Gehalt an Cysteinaminosuren festgestellt